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Living, Moving & Being
2–3 minutesThe following is a conversation I recently had with my husband, Kevin: Me: Thank you for still loving me. You’re amazing dear. Many men would be long gone if their wife was in my condition. Kevin: You’re stuck with me.… Continue reading
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Enjoy It While You Can
2–3 minutesThe end of May our youngest, Micah, graduated from high school. My mommy heart swelled with pride and tears ran down my cheeks as I watched him walk down the aisle to “Pomp and Circumstance” I wondered, “Where did time… Continue reading
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God’s Megaphone
1–2 minutesI was blessed in listening to a sermon by Elizabeth Elliot recently about suffering. She shares many inspiring insights in her YouTube series, “Suffering is Not For Nothing”. She is deceased now, but she had her share of trials in… Continue reading
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What Would You Do If Healed?
2–3 minutes“What would you want us to do if you were miraculously healed from ALS?” my husband asked me as he walked into our bedroom. “Would you like to be missionaries in Africa or somewhere else?” His questions reverberated deep inside… Continue reading
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Is It Worth It?
3–5 minutes“Does she really want to live in her present totally paralyzed situation?” A family member said that several people have asked that question when asking about me. ALS is an unrelenting, tortuous, terrible disease. I can feel everything, but can’t… Continue reading
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Just When I Need Him Most
2–3 minutesIt’s been awhile since I published my last blog. I’m still here, not much has changed. Things are going well overall although we’ve been battling a bit of an infection around my trach stoma. Every day has many hard moments,… Continue reading
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Lord, I Need a Break!
2–3 minutesLord, I Need a Break! (journal entry, turned blog) Oh Lord, I am in desperate need of some hammock time. Before ALS, when the stress of life started to overwhelm me, I’d grab my backpack, which had my hammock,… Continue reading
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It’s Not About Me
2–3 minutesOur daughter and son-in-law recently took some pictures of Kevin and me for our 35th anniversary. They have a nice camera and did a great job, but when they sent a few pictures to preview I texted back: “Thanks for… Continue reading
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Mercies in Disguise
2–4 minutesA few nights ago I found myself in a scary situation. I woke up around 11:45 feeling sore and achy, desperate to be moved. Awakening Kevin with my eye-gaze computer, I requested him to turn my head and make a… Continue reading
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Giving Up?
1–2 minutesRecently I happened across a comment on a Facebook support group by a lady with ALS who basically said, “I don’t mean to be blunt, but I’m not getting a feeding tube. When I get to the point that I’m… Continue reading
