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Mercies in Disguise
A few nights ago I found myself in a scary situation. I woke up around 11:45 feeling sore and achy, desperate to be moved. Awakening Kevin with my eye-gaze computer, I requested him to… Read More
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Giving Up?
Recently I happened across a comment on a Facebook support group by a lady with ALS who basically said, “I don’t mean to be blunt, but I’m not getting a feeding tube. When I… Read More
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The Last Time
One of my favorite places to unwind and enjoy nature is by Lake Harriet a small lake here on the edge of Ouachita Hills campus. I used to love walking around it or hanging… Read More
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Am I Going To Die?
“There’s a 90% chance you have ALS.” When I heard those shocking words from my neurologist almost 4 years ago, tears immediately sprang to my eyes. I didn’t know many details about the disease,… Read More
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Giving Up My Rights
I recently listened to “The Pineapple Story” by missionary, Otto Koning. He humorously narrates the story of planting pineapples in Papua New Guinea where he was working with an uncivilized, indigenous group of heathens who kept… Read More
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A Day in the Life… With ALS
I only ever remember seeing one man with ALS before my own diagnosis 3 1/2 years ago. My kids were selling Christian books with a group in Kentucky and came to a house where… Read More
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Silent Cries
My body definitely isn’t cooperating, but I’m still totally “me” on the inside; desperately wishing I could communicate more easily what’s on the inside to the world outside. One of my cousins recently texted… Read More
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Is God Done With Me?
A friend recently shared an extremely inspiring testimony of a man telling of his mom’s firm faith, that “God does all things well” even through her debilitating polio disease (see link for full testimony… Read More
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A Frustrating, Flowing Fountain 😩
I feel so weak to know how to deal with this new frustrating challenge. It says on one of the ALS resources sites: “ALS patients who experience swallowing problems often notice that they seem… Read More