Recently I happened across a comment on a Facebook support group by a lady with ALS who basically said, “I don’t mean to be blunt, but I’m not getting a feeding tube. When I get to the point that I’m confined to a wheelchair that’s when I’ll be done.” I don’t know her situation and know it’s a personal choice, but that comment made me feel so sad.
I think of all the many joys and blessings I would’ve missed out on if I had given up 2 1/2 years ago when I got my feeding tube! When I look back through the pictures and memories since ALS I’m so thankful for each one, and each day of life. Of course the greatest recent blessing has been being here for my sweet grandson’s birth last September and to enjoy each smile and achievement. What a tremendous gift!
It also brings tears to my eyes knowing that I wouldn’t be here without my loving family and their faithful care for me! The fact that they still want me here and surround me with love, care and acceptance each day amazes me! I know intense, constant 24/7 caregiving is a heavy load. Yet they untiringly, faithfully continue on, even when I can’t give back much, and have drool running down my face! It is all a powerful demonstration of Jesus and His love for me. More tears.
Thank you dear Lord for your many blessings to me, especially my loving family! Grow us all through this journey to have the strength we need and be a greater witness and blessing to others. And help me have wisdom to know how to encourage others who are struggling, discouraged or tempted to give up.
“May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit.” Romans 15:13 NIV


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