Here’s my every-other-month dose of randomness and updates!
• Today, November 8, is Hannah and Jon’s 6th wedding anniversary! And November 16 will mark a year since Nathan and Daniela’s beautiful wedding. So very thankful for God’s leading our two oldest children to godly mates and bringing Jon and Daniela to join our family. What a blessing they are! Happy Anniversary!
• My sweet Bethany “snuck one up on me” by publishing the surprise birthday blog from my family instead of what I thought she was writing! Thank you to all that sent thoughtful birthday greetings! I’m sorry I can’t respond to each one!
• Speaking of birthdays, it was my dear Kevin’s 60th, October 29. I regret we didn’t get to post a tribute for him. We had a busy, fun, meaningful weekend as Nathan and Daniela flew down to celebrate with us. He is my favorite person, and faithfully juggles my needs and so much else with a smile! The kingpin of our family.
• Blessings abound!!! You may have seen on social media that Nathan and Daniela are expecting their first baby the end of March!! It’s a boy so will carry on the Powell name. So very exciting!!
• -My eyegaze computer is like my lifeline for communication and connecting to the outside world! PTL for modern technology! I do use a few more primitive eye movements for communicating though such as eyebrows up means “yes” and a blink means “no” or blinking twice when needing trach suctioning.
• Congratulations to our nurse, Susan, who is getting married in a couple weeks! We have mixed emotions because we’re so happy for her yet sad because this means she’ll be moving to Missouri and leaving us. She has been with us for the last nearly two years and has consistently gone above and beyond to help us whenever she could while balancing another job and being a single mom. Her sweet caring ways, positive focus and attention to my needs have brightened our home, and she gives the BEST hair washes! She will be greatly missed!
• I’m thankful that when Kevin, Bethany or Micah sleep with me at night they seem to have the ability to go back to sleep in seconds to minutes after being awakened to help me. I’ve overall been sleeping better, but I’m sometimes not able to reenter dreamland so quickly. Sigh. But it does offer the opportunity for some extra prayer time some nights.
• God knows our need and will provide! But please continue to pray for us as it’s very challenging for my family to juggle everything without extra nursing help. Presently our daughter, Hannah, is our only paid nurse. But she can only work 2 half days a week while managing her active little ones and needs at home.
• We have a big screen TV on the wall across from my bed. We sometimes enjoy watching some documentaries and other interesting videos as a family. And it’s not so bad being able to watch church from the comforts of my bed when I can’t go.
• Bethany is the one who manages my YouTube channel and creates the shorts to post. However due to the extra busyness right now she hasn’t had the time to put into it lately. Stay tuned for more content hopefully soon!
• One man with ALS said,
“Once I gave up all pride and dignity, the rest has been pretty easy.” Hmm. I don’t feel it’s always easy to give up pride and dignity, definitely a daily, sometimes moment by moment surrender which I don’t always do well at. Thank you Jesus for your patience with me!
• Thank you again for your prayers! My sister-in-law recently sent me this beautiful song and it brings solace to my heart. Take a moment to listen and be blessed: Link
• In closing, remember that:
“The Lord is good, a stronghold in the day of trouble; and He knoweth them that trust in Him.” Nahum 1:6
See you next update in January!
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