Latest Posts
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Lord, I Need a Break!
Lord, I Need a Break! (journal entry, turned blog) Oh Lord, I am in desperate need of some hammock time. Before ALS, when the stress of life started to overwhelm me, I’d grab my backpack, which had my hammock,… Continue reading
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It’s Not About Me
Our daughter and son-in-law recently took some pictures of Kevin and me for our 35th anniversary. They have a nice camera and did a great job, but when they sent a few pictures to preview I texted back: “Thanks for… Continue reading
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Mercies in Disguise
A few nights ago I found myself in a scary situation. I woke up around 11:45 feeling sore and achy, desperate to be moved. Awakening Kevin with my eye-gaze computer, I requested him to turn my head and make a… Continue reading
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Giving Up?
Recently I happened across a comment on a Facebook support group by a lady with ALS who basically said, “I don’t mean to be blunt, but I’m not getting a feeding tube. When I get to the point that I’m… Continue reading
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The Last Time
One of my favorite places to unwind and enjoy nature is by Lake Harriet a small lake here on the edge of Ouachita Hills campus. I used to love walking around it or hanging my hammock beside it. I don’t… Continue reading
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Am I Going To Die?
“There’s a 90% chance you have ALS.” When I heard those shocking words from my neurologist almost 4 years ago, tears immediately sprang to my eyes. I didn’t know many details about the disease, other than some foggy descriptions from… Continue reading
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Giving Up My Rights
I recently listened to “The Pineapple Story” by missionary, Otto Koning. He humorously narrates the story of planting pineapples in Papua New Guinea where he was working with an uncivilized, indigenous group of heathens who kept stealing his pineapples (and a lot… Continue reading
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A Day in the Life… With ALS
I only ever remember seeing one man with ALS before my own diagnosis 3 1/2 years ago. My kids were selling Christian books with a group in Kentucky and came to a house where the man had ALS. I was… Continue reading
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Silent Cries
My body definitely isn’t cooperating, but I’m still totally “me” on the inside; desperately wishing I could communicate more easily what’s on the inside to the world outside. One of my cousins recently texted me: “Shelly…you have a perfectly functional… Continue reading
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Is God Done With Me?
A friend recently shared an extremely inspiring testimony of a man telling of his mom’s firm faith, that “God does all things well” even through her debilitating polio disease (see link for full testimony – https://www.youtube.com/watch?v=_dXQhmsWT78). It’s worth watching! At… Continue reading
